During tonight’s #hcsm chat, which is a Twitter chat about “Healthcare Communications & Social Media”, we discussed whether doctors should prescribe apps and what healthcare data should be tracked. In the course of this discussion, the question was raised – who determines what is meaningful health data?
The many patients on the chat expressed how it was important that the data reflected what was meaningful to them and their goals of care:
- @couragesings: Have a conversation with what the patient actually wants ~ ask! #hcsm
- @Twicediabetes: So true, it’s like a lot of the useless Qs HCPs ask RT “@Intakeme: Always keep an eye on your why: why are you tracking X? #hcsm“
@twirlandswirl What means the most to you as a HCP might not be what makes the patient suffer more. #hcsm
@Eddie_Cliff doctor can educate patient as to what they think is meaningful but ultimately pt’s choice #hcsm
@couragesings So much of the time docs assume they know what pts want & forget to ask us!! #hcsm
@twirlandswirl Think there’s a dichotomy between “this is medically relevant” and “this happens X times a day and bothers me” #hcsm
On the other hand, on the doctor’s side, they feel a real responsibility in determining and steering the conversation:
These different perspectives highlight just how many different sides there are to the healthcare puzzle. How can we bring these perspectives together to make better health data collection?
Because one thing is for certain – It isn’t just that the patient’s perspective should be ahead or what the doctor focuses on should come first, but that we need to bring all these perspectives together to design something to actually create better healthcare.
Definitely a worthwhile topic for a future #patientchat!
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