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“The Open Patient” Documentary Discussion and Chat with @TheLizArmy @StevenKeating #patientchat
June 26, 2016 @ 4:30 pm - 6:00 pm
Join us for a special live video discussion and twitter chat about the documentary “The Open Patient: Healing through sharing” with the amazing @StevenKeating and @TheLizArmy.
We’re also excited to have Leigh Day joining in from Red Hat, the organization behind the Open Source Stories film series.Watch the recorded interview on YouTube RSVP Here on Google+ Join #patientchat on tchat.io Join #patientchat on Twitter
We’d like to introduce you to Liz and Steven. Both have brain cancer. Both have approached the disease in different, innovative ways. And both are proponents of the open patient approach to healthcare. The Open Patient, part of Red Hat Films’ Open Source Stories series, tells the story of how openness is changing the patient/doctor relationship—and the healthcare industry as a whole. It also explores OpenNotes, an initiative focused on giving patients access to their healthcare records.
Watch the trailer here:
In 2008, Liz was diagnosed with a grade II gemistocytic astrocytoma. She was 29 years old. Her approach to this disease was different than most. She started a website, The Liz Army, and put her health information and updates out for all to see. Now, family, friends, and complete strangers can follow her journey—no matter the outcome.
Liz believes in openness, sharing, and learning together. It’s what got her through tough times. It’s also gotten a lot of other people through their own tough times. The Liz Army gives people a place to discuss brain cancer and connect with others going through the same.Watch Liz’s TedX Talk Visit The Liz Army
Steven credits curiosity with helping him discover a baseball-sized tumor near in the left side of his brain. In 2007, Steven volunteered for a MRI scan to both help science and to see his own brain. There was a small abnormality. Then, in 2014, he started noticing a vinegar-like smell that would last a few seconds every day. Looking for answers, he got another scan. That abnormality was now a tumor. As a graduate student and Ph.D. candidate in the Department of Mechanical Engineering, based at the MIT Media Lab, Steven takes on complex problems and solutions, every day. The same goes for his diagnosis. Steven approaches cancer the same way he approaches everything in life—it’s another problem to solve.Graduate student Steven Keating takes a problem-solving approach to his brain cancer Steven explains how curiosity saved his life
Leigh Day is vice president of Marketing Communications at Red Hat. Red Hat launched the Open Source Stories film series last year to highlight and share human-centered stories about how openness is a catalyst for change. Rooted in the open source values and philosophies of meritocracy, community building, and transparency that open source communities and Red Hat holds dear, Open Source Stories films feature organizations and individuals who are making “open” the default 21st-century innovation model.
Join us Sunday, June 26 at 4:30 pm Pacific / 7:30 pm Eastern live on Youtube as we speak with Liz, Steven and Red Hat and then continue on Twitter (or tchat.io/rooms/patientchat) from 5:00pm to 6:00pm Pacific / 8:00pm to 9:00pm Eastern. Be sure to include the hashtag #patientchat in all your responses! Click HERE to learn more about our Empowered #patientchat Series and how to participate.
Guiding our tweet chat will be the following Topic (T) Questions:
T1: What is the “open source” philosophy/movement? Tweet it
T2: How are patients bringing the open source mindset to their own care? Tweet it
T3: How are empowered patients changing the doctor-patient relationship? Tweet it
T4: What needs to be in place to support two-way data sharing in healthcare and shared decision making? Tweet it
T5: What is OpenNotes? How can patients get involved? Tweet it
About The Open Patient
The Open Patient promotes giving everyone full control over their health records. This approach encourages sharing and transparency, versus traditional methods of healthcare record keeping, where you must request copies of your own files to make decisions and move between providers. When you control your own health records, you take ownership of your health and, hopefully, make better-informed decisions. This helps you get the right kind of care, when you need it, on your own terms.
If you’d like to learn more and get more involved with your own health, there is a way. OpenNotes is an initiative to give patients access to visit notes written by doctors, nurses, and other clinicians. The goal, through sharing of these notes, is to give patients a better understanding of their health. This allows them to be more involved and, by opening up communication, receive better, more efficient care.