Recently, I had the privilege to take part in a #bcsm chat about metastatic disease — not only was it inspiring, but it was also informative, encompassing information and questions that are beyond the scope of any health industry conference or any medical textbook.

The men and women who live with metastatic cancer, who live with chronic pain, or even who live with diabetes, grapple with something that their physicians will never understand: how to live with their disease. How to live with something that is incurable. How to balance that knowledge with hope and persistence.

So, when I read this article, I unfortunately am not surprised at how the doctors reacted to treating a patient with metastatic cancer. I am not surprised at his sense that his wife’s care team needed to bring a different perspective to her care. But what? Where would such perspective come from?

Our hunch is that these sorts of answers and perspectives will never come from the medical community, but can only come from patients and their families. From stories and experiences. What do you think?

Emily Lu

Emily Lu

Co-founder at Intake.Me
As a medical student going into family medicine, Emily joined Intake.me to leverage technology to create a more patient-centered health care system. Emily is now a resident in the UCSF-SFGH Family and Community Medicine program. She is focused on developing a primary care system that uses technology to empower patients. Emily is passionate about underserved medicine, public health and quality improvement. She was selected to present an Ignite!Talk at Medx2015 on streamlining doctor visits.
Emily Lu