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Advocacy and the Patient with @LAlupusLady – Empowered #patientchat

May 12 @ 10:00 am - 11:00 am

READ FULL TRANSCRIPT VIA SYMPLUR

“I learned a long time ago the wisest thing I can do is be on my own side, be an advocate for myself and others like me.” – Maya Angelou

You’re Invited! Join special guest Amanda Greene, who is known on Twitter as @LAlupusLady, for our next Empowered #patientchat where we’ll discuss different types of advocates and advocacy in healthcare.

Lupus is a chronic, complex and prevalent autoimmune disease that affects more than 1.5 million Americans. Lupus is difficult to diagnose because its symptoms come and go, mimic those of other diseases, and there is no single laboratory test that can definitively identify the illness. Early detection and treatment is the key to a better health outcome and can usually lessen the progression and severity of the disease. May is Lupus Awareness Month and you can find more information and resources from the Lupus Research Alliance and also from the Lupus Foundation of America.

 

A health advocate, patient advocate and patient advocacy are different roles, yet when they work together they can and do impact patient wellness.
  • Patient advocacy is an area of specialization in health care concerned with advocacy for patients, survivors, and carers.
  • The patient advocate may be an individual or an organization, often, though not always, concerned with one specific group of disorders.
  • A health advocate is a family member, friend, trusted coworker, or a hired professional who can ask questions, write down information, and speak up for you so you can better understand your illness/condition and get the care and resources you need – giving you a peace of mind so you can focus on your recovery/wellness.

Guiding our discussion will be the following Topic (T#:) Questions:

T1: What does advocacy in healthcare mean to you?
T2: What is a health advocate, patient advocate and patient advocacy? How are they different and how do they work together?
T3: How do you personally advocate for your own health? For the health of others? Do you work with advocacy groups?
T4: What skills and tools do you need to be an effective advocate for yourself or others in the healthcare system?
T5: How can someone get started with legislative or research advocacy? Where can they learn more?
T6: What are some ways advocacy impacts healthcare? Why is health advocacy important?

We hope to see you Friday, May 12th on Twitter (or tchat.io/rooms/patientchat) at 10:00 am Pacific / 1:00 pm Eastern. Be sure to include the hashtag #patientchat in all your responses!

Empowered Patient Chats (#patientchat) are held every other Friday at 10:00 am Pacific / 1:00 pm Eastern and during the chat patients and advocates come to learn from each other and discuss topics of interest to empowered patients.

Click HERE to learn more about the Empowered #patientchat Series plus read tips on how to participate.

Related Resources:

Please read our Empowered Patient Chat guidelines.

You can reserve your spot at a future webinar here.