When we organized yesterday’s lively #patientchat on what is your patient superpower, we didn’t expect to get such a lively response! We talked about what people knew about their disease, celebrated their superpowers, and developed an awesome new superhero called Ecubed for empowered, engaged and educated patient!

Learn more about #Ecubed and

Q1: What do you know better about your disease than anyone else

  • A1: the amount of pain I live with – abrewi3010
  • A1: for me it’s my highs and lows with diabetes – markjohn1
  • Q1 I have come to know my limits #PsA – MettaMarilee
  • A1 I know my body better than anyone else, I learned to listen, when something isn’t right, I ask q’s if symptoms persist. – chemobrainfog
  • A1 I may not know my disease better than most, but I know what to watch for and that’s quite important. – chemobrainfog
  • @chemobrainfog Suuuuhweet!! AnnMarie’s superpower = she just got back from the visiting White House as an advocate – bravebosom
  • A1: My power = I changed my future, and now fight for rights of BRCA #previvors to #FreeTheData – bravebosom
  • A1 I guess my patient superpower was the support from family. Because I felt pretty powerless – darlakbrown

Q2: If you had to pick a superhero that is inside you, who would it be?

  • A2 Not a super hero but I’m going with Yoda from Star Wars. Everyone should know they have the “force” – chemobrainfog
  • A2 and even if THEY don’t have “the force” there are advocates who are stepping up on their behalf like @BraveBosom – chemobrainfog
  • A2. Superman because I want to see through the bull from some of the medical professionals – markjohn1
  • A2: not an expert on superheroes, but would want to be able to fly and fight for people in pain – mettamarilee
  • A2. The power to make informed, confident health care decisions. – ErinSilveous
  • A2 Also, any super hero who has a big voice and isn’t afraid to use it. (Mostly responsibly) – chemobrainfog
  • A2 Or someone who is a sponge for information with a BRAIN (ahem) that retains the information. I’d like to be that guy. – chemobrainfog
  • A2 Santa Claus cause he can grant wishes! – abrewi3010
  • My superpower is sharing what I know. To get it studied,endured, read and listened to others online and in real life… – anetto
  • Did someone say Superpower? I transform into a “caped crusader” for #lupus & @Alliance4Lupus –LaLupusLady
  • A2 The message, learn, understand, communicate, accept help. Is there a superhero like that? Lets invent one. – chemobrainfog
  • A2: Also the power to connect others, and courage to start something new. I’m looking at YOU @darlakbrown and @Intakeme! – Bravebosom

Q3: What did you do to get your superpower?

  • A3 Set aside my own fears in favor of knowing I’m trying to do something I believe in… which is greater than any fear. – chemobrainfog
  • A3 get enough rest, connect with supportive people & laugh – mettamarilee
  • A3 I attended #Medx and decided I was going to change the world. –  abrewi3010
  • A3. I researched as much as possible so I would know as much as possible. – markjohn1
  • One thing that helped was laughing at every condition and looking at it as it was renting my body from me. – markjohn1
  • A3: I decided to stop being afraid and alone. Decided to stop waiting for someone to come save me, and to take care of myself. – bravebosom
  • Patient with #mecfs here, my superpower is social media, for awareness and advocacy for #MECFS. –Katiissick 
  • A3. I built a health forum for patients/consumers, health professionals and brought Medline to the public for 1st time. – ErinSilveous

Bonus topic introduced by @chemobrainfogEvery answer to Q3 is awesome. Every single one. Maybe we need to combine those to make the perfect superhero! 

  • @chemobrainfog What should we name our new superhero? –darlakbrown
  • Good one! We need a name and look –markjohn1
  • Sounds very much like empowered patient to me. –chemobrainfog
  • Our new superhero is named EPATIENT with an E on the chest like superman?! So awesome. @chemobrainfog –intakeme
  • I say “E Cubed” Empowered, engaged, educated. Maybe we should hashtag that? #ECubed –chemobrainfog
  • I’m having visions of a cubed superhero—a la Lego! –DrBeckerSchutte
  • I say we make it E3 on the chest! –chemobrainfog
  • Lets make an E3 logo smashing out of a cube! You saw it here first so can someone just credit me if they draw the damn design? –chemobrainfog
  • E3 “emerging” from the boxes we’ve been in for a long time, and now adding an “essential” voice to the conversation –chemobrainfog
  • @chemobrainfog Yes, I love that. E3 on the chest – empowered, engaged, educated! Watch out. –intakeme
  • There are lots of great words that begin with the letter E, I’m just saying! –chemobrainfog
  • Empathy—one of my personal favorites. –DrBeckerSchutte

So in summary, this week’s chat was brought to you by the letter E, the number 3, and the spirit of collaboration. Who wants to draw the Ecubed epatient logo for us? We’ll feature all the best entries here on our blog! Anybody inspired?

Emily Lu

Emily Lu

Co-founder at Intake.Me
As a medical student going into family medicine, Emily joined Intake.me to leverage technology to create a more patient-centered health care system. Emily is now a resident in the UCSF-SFGH Family and Community Medicine program. She is focused on developing a primary care system that uses technology to empower patients. Emily is passionate about underserved medicine, public health and quality improvement. She was selected to present an Ignite!Talk at Medx2015 on streamlining doctor visits.
Emily Lu